2013 May | MVP Cancer Courage

Treatment – pause.

May 28, 2013 by

Last weeks treatments were pretty intense on my skin.  The radiation area is really sunburned and very, very sore.  It has cumulative effects as the weeks go on.  My medical team thought that the three day weekend over Memorial Day, would be enough of a break to start up again today.  Unfortunately, it was not.  The weekend was tough – mentally and physically.  My skin feels like the worst sunburn you could ever imagine.  It is very uncomfortable to sleep, and sleep is what I desperately need! I met with Dr. Moore today before my treatment and she decided that I needed one more day for my skin to recover.  Tomorrow we will start what is called the Boost treatments.  Boosts are typically given towards the end of radiation schedule, but apparently it can...

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My Marathon….

May 25, 2013 by

Yesterday was the end of week FOUR.  Yippee! Despite my enthusiasm, being over half way through my treatment schedule, I am extremely tired.  I’m very sore/sunburned on the radiation area and feeling very spacey – something the doctors call “radiation fog”. Everything I am experiencing, my doctors say, is completely normal.  It doesn’t change the fact that this is tougher than I thought it would be.  After the shock of my diagnosis, I kept envisioning radiation as the best outcome.  IT IS….but it’s definitely not a cake walk. I’m still keeping a positive attitude, but those days that I want to curl up in my bed are coming a bit more frequently now.  To be expected, but they are still frustrating to me, and I am just exhausted…….Many special thanks to my friends, Annie Chapin, Jen Thompson...

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Courage.

May 18, 2013 by

People say I’m courageous.  Everyone who is battling something in their life and doing it with a good attitude is courageous.  The ups and downs of life take courage, regardless of what it is.  It’s all in the attitude. I have two choices, right?   1.  Pull down the shades and curl up in a ball on my bed and cry.  (believe me, on some days, I’d like to!)   2.  Stay positive through the pain and try to see the blessings on the journey.   I choose….# 2, to do what I’m doing, trying my best to look at things from a positive perspective.  That means keeping my head up every day and marching forward through the process with the best attitude I can have – and a smile (most of the time).  ...

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My Chef!

May 16, 2013 by

As I mentioned in a previous entry – my amazing book club and several other wonderful friends hired a chef to cook gluten free, cancer fighting meals for us every Thursday night!  This incredible chef will come every Thursday afternoon to cook healthy meals in our kitchen for the duration of my radiation.  I am so blessed…..and I’m super tired in the afternoons/evenings after my radiation treatments, so this has been absolutely great! My chef’s name is Minna Suh Hughes www.healthbywholemeals.web.com – she is very talented in the kitchen (not to mention super cute)….AND she’s originally from Chicago!  She grew up in Palatine, which is the town neighboring Barrington, where I grew up!  Small world. Minna comes in, cooks delicious healthy meals within hours and then leaves my kitchen spotless and my refrigerator full! I...

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Inspiration from Arkansas

May 16, 2013 by

Many people say, aside from their team of specialists; faith, family and friends are the biggest factors in recovery. As I have mentioned before – people touch my life in big ways and in small ways every day…..all ways are greatly appreciated and have special meaning to me.  Many times things seem to come at a time when I need it most. I grew up with neighbors in Barrington who were like family to me.  Pat and Alan Gumtow are now retired and living in Arkansas.  They were like my second parents growing up, and well into my adulthood.   I have such fond memories of running between our two houses, making doll clothes, cooking and baking with Pat and sharing funny jokes with Alan.  After their daughter Michelle came, we played with her like she...

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My Positive Energy Posse.

May 10, 2013 by

“Let us be grateful to people who make us happy, they are the charming gardeners who make our souls blossom.” – Marcel Proust I know I’ve mentioned how incredibly wonderful my friends and neighbors have been over and over in this blog…..but it’s true! My wonderful book club and a few other close friends got together and arranged to have a chef come in every Thursday for the next six weeks to cook Gluten Free and Cancer Fighting meals for me and my family!    When I found out they had done this I burst into tears (in a good way).  I was so incredibly touched. In addition to that, several other friends decided to put a calendar together where we could have a central place to keep track of other meals for the...

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Ups and Downs with Poise.

May 9, 2013 by

My wise friend and yoga instructor, Robin Giacomo says that, “POISE is accepting life as it is showing up, and then meeting it with GRACE and HUMILITY.” I’m now into week two of my radiation treatments and as the treatments themselves are getting easier emotionally, physically though, I’m getting very tired. I’m not sure if that is due to lack of sleep from a sick toddler last week, work, a busy weekend with three kids, grade school carnivals pre-school carnivals and birthday parties…..or from the radiation.  I’m pretty sure its a combo of both. I’ve got to learn how to better build in rest time for myself as the weeks go on……managing a house, work, kids and scheduling in time to rest and rejuvenate.   Aside from all of my other “jobs” and roles...

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Week one, done!

May 4, 2013 by

Every day is a bit better, not so shocking, since I know what to expect now.  I can see how this treatment schedule will become more of a routine.  I’m getting to know the technicians, who are all great….I met a nice woman in the waiting area, Linda, who is in her final week of radiation. And another Doctor has been added to my “team”.  Dr. Beth Allen Moore, who will be checking in with me weekly.  Dr. Moore came from New York-Presbyterian/Weill Cornell Medical Center and Greenwich Hospital.  I liked her a lot.  I am very happy with all of the Doctors on my team.  Which makes all the difference. Focus….. A wise friend reminded me that I am doing this to live.  To go through this process in the hopes that the...

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Day Two.

May 1, 2013 by

Today was better.  Still crappy, but at least I knew what to expect and wasn’t shocked by the machines and the process. My neighbor and dear friend, Linda Banta went with me today.  It was a beautiful sunny day.  We went to lunch and then went to Benefit to get my eyebrows and our makeup done! At 2 pm, we went to my appointment.   There weren’t as many people in the waiting area this time so Linda and I were able to speak freely and she was able to make me laugh. As the technicians ushered me into my treatment room.  I asked them to help me out and walk me through everything once again.  I told them that the day before had been very tough for me emotionally.  They were very kind and...

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My first day of Radiation.

May 1, 2013 by

Yesterday was a tough day.  A lot tougher than I had imagined.  My first treatment did not physically hurt at all, but emotionally it was hard. I was a bit anxious waking up, I hadn’t slept well at all the night before, probably in anticipation of the day ahead.  It was a rainy, gray day here in New York.  My resolve was to just “power though”.  To quote my dear friend Andrea Weetman; “The only way out, is through.”  That was my plan. Anne Randall, one of my best friends, went with me to my appointment.   Anne has been by my side, daily, since the beginning.  Thank you Anne, for taking every step of this journey with me.  I am grateful for your friendship. We went to lunch at Andy’s Pure Foods in Rye and...

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